Why Is The Cure For Cancer So Expensive?

I don’t normally do this. Get out of bed at ten past six in the morning to go and join a protest against Roche, the giant pharmaceutical company. But yesterday I am very glad I did. One bus and one tube later and I was standing outside Westminster Cathedral with an eclectic group of activists, doctors and charity workers. The most striking were those who’d donned the custom-made fluorescent pink dresses with added boobs. I wore a modest headband with messages stuck to it including ‘Pharma Greed Kills’ and similar protestations. Then off we went, marching from the Cathedral to the revolving doors of the Association of the British Pharmaceutical Industry.

Donna
Donna, in all her bright pink glory!

The groups on the march included Act Up London, Treatment Action Campaign and Stop Aids, all united in the struggle against HIV/AIDS and all aware that the greed of pharmaceutical companies affects people with so many other illnesses as well. Also present were Universities Allied for Essential Medicines, a student-led organisation working to improve access to and affordability of medicines. And it wasn’t just London in protest there were groups in Brazil, France, Malaysia, the US and Zambia. Meanwhile, the crowds gathering in South Africa were not only just making demands of Roche but were commemorating Tobeka Daki, a passionate activist who sadly died from cancer unable to afford the treatments.

Back in London we started chanting as we marched, “Say no to Pharma Greed, Give us the cancer drugs we need” and other less catchy numbers that didn’t rhyme. We got stared at, photographed, laughed at and cheered by various members of the public. At 8.30 in the morning we did make for a nice change from the usual grey of the morning commute. We overshot the ABPI building but quickly backtracked to set up shop. Whilst others chalked on the pavement in pink, gave speeches and waved placards I handed out leaflets and the message was clear: Roche can profitably manufacture a year’s supply of Herceptin® (unbranded it’s called Trastuzumab), a cancer fighting drug, for £190 yet it is currently costing patients tens of thousands of pounds annually. People are dying from a disease that can be treated because Roche is putting profits before people. Justice for people with breast cancer, that’s what we want.

Many people avoided my gaze as I tried handing out the flyers whilst others just carried on listening to their music (seriously, I spotted so many of those fancy, giant ambient-noise blocking headphones than ever before). Some did take the flyer with an awkward smile whilst others stopped to find out more. That, for example, the development of Herceptin® and other vital cancer treating drugs depended on public sector support, philanthropic donations and the US government’s National Institutes of Health. Whilst Roche and one of its subsidiaries, Genentech, also invested in the development of these drugs for some reason they hold the patent so can set the price. And that price is high, they’ve already earned more than $60 billion in profits from the sale of Herceptin® alone. Roche’s CEO, Severin Schwan, isn’t doing that badly either. Back in 2015 he took home a nice salary of $12 million. So, whilst Roche could easily cut the cost of these drugs and still make a profit they just aren’t.

pharma-greed
Pharma Greed Kills

But it’s worse than that because Roche aren’t just keeping the prices artificially high they are fighting dirty to ensure they have a monopoly over these drugs. In India Roche have embroiled the country’s drug regulatory body and producers of similar products to Trastuzumab in long-running and complex litigation to prevent the widespread availability of potentially affordable versions of the drug. In Brazil and Argentina, Roche is one of the pharmaceutical companies litigating against those governments for their attempts to use legal international safeguards to protect public health and make Trastuzumab more accessible. In South Africa Roche holds patents on Trastuzumab that will last until at least 2033. In essence, Roche are fighting tooth and nail to keep the prices high even whilst so many people die. It turns out that ill and dying people are profitable.

Chalk
Innovative use of some pink chalk

Back on the grey streets of London I was very grateful every time someone took a flyer. Because even if they just put it in the recycling bin when they get home what is important is that more people are aware. Cancer is a disease that touches the lives of all of us. 1 in 8 women will be diagnosed with breast cancer in their lifetime and 1 in 870 men will receive this diagnosis. We may have lost someone we cared for, we may know someone who has it or a friend of a friend, or ourselves. And whilst it is risky to talk of a ‘cure’ for cancer there are so many life-extending medicines out there which can treat it and improve the lives of those who have it. So it’s not that the cure doesn’t exist it’s that the cure is too expensive. However, at 8.30 am on a grey, Tuesday morning in February I did not always have the time to explain this as people passed me by. But many did stop to look at the giant pink banner: “Pharma Greed Kills” is a simple and shocking statement and it is true. Profits are being pitted against people and profits are winning. Until we can contain and control money we will keep being forced to fight this ruthless, tragic battle because too many people love money more than they love others (or even themselves). I hope one day Severin Schwan wakes up and does the right thing. Until then I’ll keep doing my best to wake up before the sun rises so I can join those bright pink many-boobed beacons of hope.

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Still Waiting at the VAULT

Beneath Waterloo station lie the vaults. They are long, cavernous rooms made of brick and stone. They are dank and smell a little of damp. They are also the site of Great Gatsby themed parties, plays about starships, masked balls and for only two more days – Still Waiting. As the blurb promised this is an event “about the hundred handshakes you experience in the Calais Refugee Camp, volountourism and packets of pasta, and our relationship with Europe’s refugee crisis.” And as the trains rumbled overhead so I was transported into a very different world. Actually, no, I wasn’t transported because Still Waiting is about this world and the problems it is facing. Perhaps, instead, rather than being taken away on an escapist adventure I was more deeply immersed in the real world. I was made to feel.

Still Waiting - at the VAULT theatre, 1st - 5th February
Still Waiting – at the VAULT theatre, 1st – 5th February

Three cast members/musicians took us through the refugee crisis via songs, statistics, jokes, laments and thoughtful interludes. The title comes from the name of a report released by Refugee Rights Data Project on the situation in Calais. It is the “largest research effort around refugees and displaced people in the region to-date” and it is called Still Waiting because so many people are doing just that, waiting and waiting for a chance to find a new home, to be reunited with family and friends, to escape the persecution of their homelands and/or for better education opportunities. And these are people who are waiting, not just photographs in a newspaper, or numbers on a spreadsheet, or stereotyped ‘masses’. They are people like us.

And that is what Still Waiting achieved – it turned the numbers into stories and the stories made me feel. Whether it was listening to the recording of Ramia’s story, a young woman who escaped Aleppo in Syria and is now living in Goumenissa in Greece. Or hearing the cast discuss their own experiences of going to (or not going to) Calais to help the refugees and the charities supporting them (they also sang a song about it called Humblebrag and it’s worth going to the show just for that!). The show costs £9 and in going you help fund Crew for Calais, one of the charities doing vital work to support refugees. Go also to be moved and to be drawn into a humanitarian crisis in a way that no broadsheet or head of government seems capable of doing. Go because this matters, it really does matter, and we are running out of excuses not to. Because the world won’t get better by itself, the world needs the cast of Still Waiting, it needs Crew for Calais and it needs the resilience and fortitude of the endless refugees forced to leave their homes.

The world needs us too and it’s events like this that remind me of that.